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Find a Specialist

We know the journey to identifying BHD is not always easy. And finding a specialist can be challenging. We are here to help you find the support you need wherever you are in the world.

We have built up a database of specialists from across the globe who have knowledge of BHD. You can search for a specialist in genetic counselling, kidney, lung, or skin. Simply select your country and area of expertise on our interactive map. Please contact us if there is not a specialist listed near you.

We work with the LAM Foundation and VHL Alliance. The LAM Foundation supports a condition called Lymphangioleiomyomatosis which affects the lungs. The VHL Alliance supports a condition called Von Hippel-Lindau which affects the kidneys. It is often the case that a LAM or VHL specialist will also have knowledge of BHD. Both organisations hold clinics across the world. Visit their website to find a clinic near you.

We rely on patient feedback and our own interaction with the medical and science community to build a network of specialists. We would love to hear from you if you are under the care of a specialist not listed on our map and would like to share this information.

  • Lung

    Wei Shi

    Childrens Hospital Los Angeles
    4650 Sunset Boulevard
    Los Angeles
    90027
    United States of America
    California

    Visit Website

  • Genetics

    Wendy Kohlman

    Huntsman Cancer Centre
    2000 Circle of Hope Drive
    Salt Lake City
    84112
    United States of America
    Utah

    Visit Website

  • Lung

    Xinlun Tian

    Peking Union Medical College Hospital
    Wang Fu Jing Da Jie
    Peking
    100006
    China

  • Lung

    Yanguo Liu

    Peking University People's Hospital
    11 Xizhimen S St
    Xicheng Qu
    Beijing Shi
    100033
    China

  • Lung

    Yoichiro Mitsuishi

    Juntendo University
    2 Chome-1-1 Hongo
    Bunkyo City
    Tokyo
    113-0033
    Japan

  • Lung

    Yoshikazu Inoue

    National Hospital Organization Kinki- Chuo Chest Medical Center
    1180 Nagasonecho
    Sakai
    Osaka
    591-8555
    Japan

  • Skin

    You Chan Kim

    Ajou University School of Medicine
    Gyeonggi-do
    Suwon-si
    Yeongtong-gu
    Woldeukeom-ro
    Korea, Republic of

  • Lung

    Yukiko Namba

    Juntendo University
    2 Chome-1-1 Hongo
    Bunkyo City
    Tokyo
    113-0033
    Japan

  • Lung

    Zulfiya Syunyaeva

    University Of Munich
    Geschwister-Scholl-Platz 1
    Munich
    Munchen
    80539
    Germany

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