Here you will find key resources about BHD for both you and your doctor that can be read online or printed.
We always want to hear your thoughts on what resources you think could be useful. Contact us with your ideas.
If you would like to carry some information about BHD and a record of your symptoms in case of emergencies, please download the BHD Medicard. The BHD Medicard can be printed and folded up into the size of a credit card so you can put it in your wallet.
Clinical Introduction to Birt-Hogg-Dubé Syndrome
This leaflet provides an overview of BHD so doctors can confidently recognise BHD. Please print out this leaflet and share it with your doctors.
This is a letter template to help you tell your family about BHD. You can add your own information in between the *stars*. Please do feel free to personalise more of the letter if you would like to.
Kidney Cancer Symptoms Overview
Learn about BHD associated kidney cancer and its symptoms.
Kidney Cancer Treatment Overview
Learn about monitoring and treating kidney cancer.
Lung Collapse Treatment Overview
Learn about lung collapses and how doctors treat them.
Skin Treatment Overview
Learn about fibrofolliculomas (the skin bumps seen in BHD) and the treatments for them.
Your Introduction to Birt-Hogg-Dubé Syndrome
This leaflet provides an overview of what BHD is, how to get tested and the symptoms.