Help save the BHD Foundation

Please join us in raising $20,000 to keep the work of the BHD Foundation alive. Following the passing of its donor, the Foundation faces closure. Patients and advocates are stepping up to build a new patient-led nonprofit that will carry on this vital mission — but we urgently need your support to cover critical transition costs.

Your donation will:
– Maintain the website, the world’s most trusted source for BHD information
– Safeguard the patient registry, a global resource driving research into our condition
– Ensure education and support for patients, families, and medical professionals
– Lay the groundwork for a U.S.-based nonprofit to expand fundraising and grants

The BHD Foundation has been a lifeline for so many — providing accurate information, supporting research, and giving our community a voice. Without immediate funding, this work could be lost. Every contribution helps.

We are deeply grateful to those who have already donated — your generosity has given us the momentum and hope we need at this turning point. Together, we can protect what has been built and ensure BHD patients and families worldwide continue to have support, education, and community for years to come.

Donate today and help us carry this mission forward.