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Joanna is in a white wedding dress with her new husband. They are on a mountain.

Joanna’s Story - Married on a Mountain with a Collapsed Lung

Joanna got married 7500ft above sea level at the top of a mountain. She didn’t realise the pain in her shoulder was her lung collapsing and that she had a rare condition called Birt-Hogg-Dubé (BHD) syndrome.

We partnered with Rare Revolution to tell her inspirational story and raise awareness of the rare causes of lung collapse.

Read her story or watch the short video below.

Read the transcript.